When your child is unwell, the urgency feels absolute. The system's response often doesn't match that urgency. Paediatric waiting lists are long, GP referrals are sometimes generic, and the specialist your child ends up seeing may not be the one best suited to their condition.

The paediatric referral pathway

In the NHS, your GP refers to the local paediatric department. You're allocated to whichever consultant has the next available slot. For common conditions, this works adequately. For complex, rare, or multi-system conditions, it can mean seeing a general paediatrician when your child needs a paediatric sub-specialist.

The key question to ask: "Is the person we're being referred to a specialist in my child's specific condition, or a general paediatrician?" For conditions like epilepsy, metabolic disorders, complex allergies, or neurodevelopmental conditions, the difference in expertise is clinically significant.

Escalation strategies

If you've been waiting beyond the 18-week target, the same escalation strategies apply as for adults: contact the booking team, ask your GP to upgrade priority, use PALS, and if necessary, submit a formal complaint.

For urgent concerns, you can also ask your GP to make a direct telephone referral to the consultant — not just a letter that joins a queue. If your child's condition is deteriorating while waiting, the clinical team needs to know this in real time.

When to go private

Private paediatric care can dramatically accelerate the diagnostic phase. Seeing a specialist within a week rather than waiting months means earlier diagnosis, earlier treatment, and less anxiety. For developmental assessments (autism, ADHD), where NHS waits can exceed 2 years in some areas, private assessment may be the only way to get timely answers.

If you go private for diagnosis, ensure the private specialist communicates directly with your NHS team so that ongoing care and treatment can continue through the NHS pathway.

Related: Stuck on an NHS Waiting List? · How to Stop Specialists Working in Silos